Cystic Fibrosis Awareness Day 2013

Yesterday the Cystic Fibrosis Foundation hosted Cystic Fibrosis Awareness Day at the Massachusetts State House. This event brought together Massachusetts Legislators and CF advocates, researchers, and care-givers. The event kicks off Cystic Fibrosis Awareness Month (May) and the series of Great Strides Walks the CF Foundation hosts each year to raise funding for CF research.

The event was moderated by MassBio’s President & CEO Bob Coughlin and program speakers included:

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Mary Dwight, Vice President of Government Affairs, CF Foundation

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Joan Finnegan Brooks, CF Patient Advocate

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Ellen Schwanke, State CF Advocacy Chair

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Martin Mense, Principal Scientist for Drug Discovery, CFFT Lab Head

Presentation of Proclamations

Proclamations were awarded in recognition of Massachusetts CF Care Center Excellence by Pamela Spitzer, Executive Director of the Cystic Fibrosis Foundation, Representative Paul McMurtry and Bob Coughlin to the following care centers:

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Brigham & Women’s Hospital

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Boston Children’s Hospital

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Frances Pew Hayes Family Foundation

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Mass General Hospital Pediatric & Adult Center

Also awarded:

  • Bay State Medical Center
  • Tufts New England Medical Center
  • University of Massachusetts Medical Center

The Cystic Fibrosis Foundation recognizes the month of May as National CF Awareness Month. During this time — and all year-round — volunteers and people with CF and their families unite to help shine a spotlight on what CF is and the progress being made toward a cure.

A little bit about CF:

  • Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system.
  • 30,000 children and adults have CF in the United States.
  • More than 10 million Americans are symptomless carriers of the defective CF gene.
  • The disease occurs in one of every 3,500 live births of all Americans and about 1,000 new cases of cystic fibrosis are diagnosed each year.

Learn more and get involved at the Cystic Fibrosis Foundation website: http://www.cff.org/

Posted on May 2, 2013, in MassBio and tagged , , , , . Bookmark the permalink. Leave a comment.

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